LIFE WITH EHLERS-DANLOS SYNDROME
An Ehlers-Danlos syndrome symptom tracker that listens.
When symptoms reach beyond your joints, keeping track can feel complicated. Talk or type to Jetty and bring the everyday details of EDS into one place.
Your symptoms, in your own words. Available on iPhone.
UNDERSTANDING YOUR SYMPTOMS
What are the symptoms of Ehlers-Danlos syndrome?
Ehlers-Danlos syndromes (EDS) are a group of inherited connective tissue conditions. Features can include joint hypermobility, instability, pain, and skin differences, with symptoms and risks varying by type. Hypermobile EDS may also involve fatigue and digestive or upright symptoms. Being flexible alone does not establish EDS; assessment considers the wider personal and family history.
Joint hypermobility
Joints may move beyond the usual range, with effects that vary between people.
Joint instability
Some joints may feel unreliable or be prone to slipping out of place.
Joint pain
Persistent or recurring joint pain may make everyday tasks more difficult.
Skin differences
Stretchiness, easy bruising, or unusual scarring can occur, depending on the EDS type.
Fatigue
In hypermobile EDS, significant tiredness may accompany joint and other symptoms.
Symptoms beyond the joints
Hypermobile EDS can include digestive difficulties or dizziness and a racing heartbeat when upright.
Symptoms can have more than one cause, and experiences vary. A symptom list cannot tell you whether you have Ehlers-Danlos syndrome. A healthcare professional can assess your symptoms and decide which tests or follow-up are appropriate.
YOUR DAY-TO-DAY, TOGETHER
Less to remember. More to talk about.
A symptom journal gives the day-to-day details of life with Ehlers-Danlos syndrome a place to go. With Jetty, you can talk or type about your symptoms and daily life while they’re still fresh.
Jetty keeps your health notes organized over time, helping you look back on changes and prepare the symptom history and questions you want to bring to your next appointment.
What to put in your symptom journal
Note which joint is affected, what you were doing, and whether it felt painful, unstable, or both. Include the practical effects, such as trouble dressing, writing, carrying groceries, or sleeping.
If they are part of your experience, add fatigue, skin changes, digestion, and symptoms when upright. Keeping these details together can help you raise concerns across appointments without assuming every symptom has one cause.
Questions you might bring: How does my symptom history fit with the EDS type or related condition you are considering? Which joint and non-joint changes would be most useful for me to record?
A LITTLE MORE CLARITY
Ehlers-Danlos syndrome symptoms & tracking FAQs
About this information
NHS and NIH MedlinePlus Genetics EDS guidance. This is general education, not a diagnosis or a treatment plan.
Content updated October 13, 2026 · Jetty Health
You don’t have to keep it all in your head.
Start with how you feel today. Let Jetty help you keep a clearer picture of life with Ehlers-Danlos syndrome.
Jetty helps you organize your health information. It does not diagnose or treat medical conditions.